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UrduStigma leads to discrimination and can affect all aspects of a person’s life. Dr. Bruna Nucera talked with Mary Secco from the International Bureau for Epilepsy (IBE) about addressing stigma through listening to people with epilepsy and their lived experiences.
Tag: Epilepsy
Sleep and epilepsy: Dr. Birgit Frauscher
Bidirectional links between epilepsy and sleep have been known for thousands of years. Despite nearly a century of research using EEG investigations, the relationships are still not well understood.
Study: Seizures can be predicted more than 30 minutes before onset in patients with temporal lobe epilepsy
Seizures can be predicted more than 30 minutes before onset in patients with temporal lobe epilepsy, opening the door to a therapy using electrodes that could be activated to prevent seizures from happening, according to new research from UTHealth Houston.
Henry Ford Medical Group Appoints Dr. Brien J. Smith to Top Neurology Role
The Henry Ford Medical Group today announced Brien J. Smith, M.D., MBA, a national expert in neurology and epilepsy, as its new Chair of the Department of Neurology.
Potential Treatment Target for Rare Form of Infant Epilepsy Identified
New research from Tufts University School of Medicine and the Graduate School of Biomedical Sciences suggests that the timing of the death of certain inhibitory neurons in the brain shortly after birth may be at least partly to blame for infantile spasms syndrome (ISS), a rare but devastating form of epilepsy that develops most frequently between four and eight months of age but can emerge within weeks of birth until ages 4 or 5.
Your Neighborhood May Affect Your Survival from Stroke, Other Neurologic Conditions
People living in disadvantaged neighborhoods—areas with higher poverty levels and fewer educational and employment opportunities—had an increased risk of dying within a month of being hospitalized for stroke, epilepsy and other neurologic diseases compared to people living in neighborhoods with fewer disadvantages, according to new research published in the February 15, 2023, online issue of Neurology®, the medical journal of the American Academy of Neurology.
Don’t Let Epilepsy Go Unchecked
Many think of epilepsy, a neurological disorder affecting 3.4 million Americans, as a chronic condition marked by occasional seizures. But the disease can be deadly, so it is essential for patients to get their seizures under control with proper treatment, said Lisa Bateman, MD, director of the Cedars-Sinai Health System Surgical Epilepsy Program.
Traitement de première intention inapproprié de l’état de mal épileptique : problématique et solutions
Malgré les recommandations, le traitement de première intention de l’état de mal épileptique est souvent inapproprié. Des études suggèrent que jusqu’à deux tiers des patients reçoivent des doses subcliniques de benzodiazépines, soit avant d’arriver à l’hôpital, soit pendant un traitement hospitalier d’urgence. Existe-t-il des solutions ?
Exercise is beneficial for people with epilepsy. Many physicians still don’t encourage it.
Other than in rare cases, physical activity does not increase the risk for seizures in people with epilepsy. But people with epilepsy are less active than the general population and have poorer objective physical fitness than the general population. How can we change that?
Neuroscience reveals complexity of human brain networks
Scientists detected simple movement like pushing a button sends ripples of activity throughout networks of neurons spanning across the brain.
Como puede la atencion primaria de salud ayudar a cerrar la brecha en el tratamiento de la epilepsia? Un viaje por Andhra Pradesh, India
Un equipo de investigadores visito dos centros de atencion primaria de salud en Bhimaravam para evaluar la atencion proporcionada a las personas con epilepsia a traves del sistema de atencion primaria de salud.
Black, Latino People with Epilepsy Less Likely to Be Prescribed Newer Drugs
Among people with epilepsy, Black, Latino and Native Hawaiian and Other Pacific Islander people are less likely to be prescribed newer drugs than white people, which can be a marker of the quality of care, according to a study published in the January 11, 2023, online issue of Neurology® Clinical Practice, an official journal of the American Academy of Neurology.
Automated epilepsy lesion detection on MRI: The MELD Project
In this episode of Sharp Waves, the ILAE podcast, Dr. Maryam Nabavi Nouri talks with Dr. Konrad Wagstyl about the MELD Project, an open-science consortium using deep learning principles to develop automated lesion detection of clinical MRI data.
Can Diet Combined with Drugs Reduce Seizures?
Following a modified Atkins diet high in fat and low in carbohydrates plus taking medication may reduce seizures in people with tough-to-treat epilepsy, according to a study published in the January 4, 2023, online issue of Neurology®, the medical journal of the American Academy of Neurology.
Podcast: From bedside to industry: Epilepsy career profile of Dr. Caroline Neuray
Dr. Alina Ivaniuk talks with Dr. Neuray about her career path from medical school to industry CEO. They discuss the power of peer mentoring, ways to improve medical education, and finding the courage to accept change.
International recommendations for diagnosis and treatment of new-onset refractory status epilepticus (NORSE)
First-line immunotherapy and the ketogenic diet are two main recommendations for treatment of NORSE of unknown cause, according to results from an international consensus group. Dr. Maryam Nabavi Nouri interviews first author Dr. Ronny Wickstrom.
How can primary health care help to close the epilepsy treatment gap? A journey through Andhra Pradesh, India
Hours from the nearest city in India, down a pothole-studded road framed by fish farms, primary care centers in Andra Pradesh provide service to tens of thousands of people. How do these centers care for people with epilepsy, and what challenges do they face?
Podcast: Nursing roles and value in epilepsy care
Nurses play crucial roles in epilepsy care, but their perspectives and voices are often missing. The ILAE Nursing Section is a “home” for nurses around the world who care for people with epilepsy. Sharp Waves talked to section leaders.
Jayaraman awarded $3.5M grant to study glutamate receptors involved in learning, memory, and other neurological processes
A five-year, nearly $3.5 million grant to study the mechanisms of brain receptors involved in neurological disorders such as learning disabilities has been awarded to Vasanthi Jayaraman, PhD, of UTHealth Houston by the National Institutes of Health.
CHOP Researchers Discover Genetic Variant Associated with Earlier Onset Childhood Epilepsy
Researchers have discovered a specific genetic variant in SCN1A, the most common genetic epilepsy, that leads to an earlier onset of epilepsy, with clinical features distinct from other epilepsies. The researchers also identified a potentially effective treatment strategy.
La Section des soins infirmiers vise à répondre aux besoins des infirmières en matière de soins de l’épilepsie dans le monde entier
À l’automne 2021, la section des soins infirmiers de l’ILAE a été créée pour créer un « foyer » pour les infirmières du monde entier qui s’occupent de personnes atteintes d’épilepsie.
La Sección de Enfermería tiene como objetivo satisfacer las necesidades de las enfermeras para la atención de la epilepsia en todo el mundo
En el otoño de 2021, se formó la Sección de Enfermería de ILAE para crear un “hogar” para las enfermeras de todo el mundo que atienden a personas con epilepsia.
With more treatment options, outcomes improve for patients with epilepsy
Epilepsy is a neurological disorder in which brain activity becomes abnormal, causing seizures or periods of unusual behavior, sensations, and sometimes loss of awareness. Anyone can develop epilepsy, and it affects both males and females of all races, ethnic backgrounds and ages.
Inadequate first-line treatment for status epilepticus: The issue and solutions
A benzodiazepine is the first-line treatment of choice for status epilepticus. Despite guidelines from 2012 and 2016 thta recommend medication types, doses, and means of administration, benzodiazepines are often underdosed, or not given at all.
The value of epilepsy specialty nurses: Taking action
Nurses who care for people with epilepsy fulfill dozens of roles, helping people to navigate clinical, educational, emotional, and social dimensions of epilepsy. But the depth, breadth, and impact of these roles is not always recognized.
Study Finds Risk of Seizures Is Higher After COVID-19 Than After Influenza
People who have a COVID-19 infection are more likely to develop seizures or epilepsy within the next six months than people who have an influenza infection, according to a study published in the November 16, 2022, online issue of Neurology®, the medical journal of the American Academy of Neurology.
La encuesta de ILAE destaca las preocupaciones globales sobre los medicamentos genéricos anticrisis
Los neurólogos de todo el mundo tienen preocupaciones sobre el uso de medicamentos genéricos anticrisis, cuestionando la calidad deficiente o inconsistente, el acceso limitado, el costo y la falta de control regulatorio.
La encuesta de ILAE destaca las preocupaciones globales sobre los medicamentos genéricos anticrisis
Les neurologues du monde entier s’inquiètent de l’utilisation d’antiépileptiques génériques, notamment concernant leur qualité médiocre ou inégale, leur accès restreint, leur coût, et l’absence de contrôle réglementaire.
Podcast: Epilepsy medications during pregnancy may affect infant development
A recent study reported data from more than 1,300 infants whose mothers are enrolled in the Kerala Registry of Epilepsy in Pregnancy. Babies were evaluated for mental and motor development at 1 year of age.
Career development profile: Dr. Meriem Bensalem-Owen
From medical training during a civil war to starting Kentucky’s first epilepsy fellowship program, Dr. Meriem Bensalem-Owen talks with Sharp Waves about her career journey.
Researchers Assess Barriers to Advanced Epilepsy Care in New Jersey
Structural racism and insurance are limiting factors in epilepsy treatment for minority groups, according to a Rutgers study
Functional, nonepileptic seizures show structural abnormalities in brain scans, study shows
For a long time, functional, nonepileptic seizures were not believed to involve structural changes in the brain, but a new study suggests that they are associated with structural changes that can be seen using MRI. Researchers say the findings bring potential for earlier diagnosis of functional seizures, which are often misdiagnosed as epilepsy.
Today: ANA2022 Media Roundtable to Spotlight Latest in Neuro Research
As the American Neurological Association’s 147th Annual Meeting wraps up today, October 25, the ANA is holding a Media Roundtable at 11 a.m. U.S. Central for reporters to access the latest developments in neurology and neuroscience.
VUMC Implants First Patient in NAUTILUS Study for Treatment of Idiopathic Generalized Epilepsy
A female adult patient with idiopathic generalized epilepsy (IGE) is now the first to receive neuromodular stimulation of the brain to see if it can help with seizures.
What is autoimmune-associated epilepsy: Dr. Claude Steriade
What is autoimmune-associated epilepsy, and how is it different from acute seizures with an autoimmune cause? How can clinicians best diagnose and treat these conditions? Sharp Waves reporter Dr. Maryam Nabavi-Nouri spoke with Dr. Claude Steriade.
Engineering Research Provides Non-Invasive Solutions for Diagnosing and Treating Neurological and Psychiatric Conditions
Could artificial intelligence help solve the mental health crisis? What if an algorithm allowed neurologists to know the area affected by a brain seizure? These are just a few of the questions that Maryam Ravan, Ph.D., assistant professor of electrical and…
COVID-19 and people with epilepsy: The latest on infection risk and vaccines
Does COVID-19 infection affect people with epilepsy differently? Are people with epilepsy less likely to get vaccinated? A session at the European Epilepsy Congress in July 2022 covered these topics, and more.
Wiley and ILAE deliver knowledge on epilepsy syndromes
Wiley and ILAE launched the Epilepsy Knowledge Hub to provide health care professionals with the latest research and guidelines to aid in diagnosis, classification, and treatment for people with epilepsy syndromes.
Pregnant Women with Epilepsy Have More Depression, Anxiety Symptoms
Pregnant women with epilepsy have more symptoms of depression and anxiety during pregnancy and postpartum than pregnant women who do not have epilepsy or women with epilepsy who are not pregnant, according to a study published in the August 17, 2022, online issue of Neurology®, the medical journal of the American Academy of Neurology.
Podcast: The new ILAE epilepsy syndrome classifications: Behind the scenes
What does it take to define and classify 39 epilepsy syndromes – and why is it important? Find out in the latest episode of Sharp Waves, ILAE’s epilepsy podcast.
ILAE survey highlights global concerns about generic anti-seizure medications
Neurologists worldwide have concerns about the use of generic anti-seizure medications, including poor or inconsistent quality, limited access, cost, and lack of regulatory control, according to a global survey of health care professionals.
Podcast: Menstrual cycles influence seizures in most women with epilepsy
The menstrual cycle influences seizure frequency in about two-thirds of women with epilepsy. This podcast episode explores the impact of sex hormones on epilepsy, including why some women experience fertility problems or polycystic ovarian syndrome (PCOS).
FSU team makes discovery advancing epilepsy research
A team of Florida State University College of Medicine researchers has found a link between a specific protein in the brain and increased vulnerability to neurodegeneration for individuals with temporal lobe epilepsy (TLE).
Even in sleep, your brain’s neurons are humming along to Mozart
A unique study of brain activity in the cerebral cortex of epilepsy patients found there was a robust response to sound during sleep that largely mirrored the brain’s response during wakefulness. However, there was one key difference from wakefulness.
American Neurological Association Announces Winners of 2022 Awards for Outstanding Accomplishments in Academic Neurology and Neuroscience
The American Neurological Association (ANA) has announced the recipients of its 2022 scientific awards, to be presented during the 147th ANA Annual Meeting, which will be held October 22–25, 2022 in Chicago, Illinois.
Doctors with Texas Comprehensive Epilepsy Program lead 22-year-old Tyler resident to seizure freedom
Elisabeth Gentry had experienced auras ever since she was a toddler, but she didn’t learn that the occasional strange tastes in her mouth and feelings of impending doom were epilepsy until 2015, when she was 15 years old and suffered a grand mal seizure.
La formation conviviale des enseignants sur l’épilepsie trouve également un public bienvenu chez les parents, les neurologues
En Ontario, au Canada, un groupe de psychologues et de membres d’un organisme communautaire de soutien à l’épilepsie discutait depuis longtemps de la nécessité d’une éducation sur l’épilepsie pour les enseignants.
Podcast: Life as a medical student with epilepsy
We talk with a third-year medical student, a neurology researcher, an avid rock climber, and a young man with epilepsy who had a responsive neurostimulator (RNS) implanted last year. The catch: They’re all the same person.
Podcast episode: Creating epilepsy-smart schools in India
Children spend a lot of time in school, and that includes children with epilepsy. But most teachers don’t receive training in what epilepsy is, what seizures look like, or what to do if a student has a seizure.
Epilepsy education in India: Teacher training project aims to address stigma, increase inclusion
Schools can be important for epilepsy screening, as well as awareness of seizure first aid and basic knowledge. In a rural area of Punjab, a three-year project of surveys and training activities aimed to increase knowledge and dispel myths and misconceptions.