“Talking about things that no one else will talk about”: Torie Robinson, host of Epilepsy Sparks Insights

Diagnosed with epilepsy at age 10, Torie Robinson uses her podcast to share knowledge with people with epilepsy, their families, and the public. Her episode topics range from the biochemistry of epilepsy to gastrointestinal issues and much, much more.

Comment les médecins peuvent-ils encourager les personnes atteintes d’épilepsie à pratiquer une activité physique ?

Des études suggèrent que faire de l’exercice améliore la condition physique, l’humeur, la pensée et la mémoire, ainsi que la qualité de vie globale des personnes atteintes d’épilepsie – autant d’avantages qui s’appliquent également aux personnes non épileptiques.

Cerebral amyloid angiopathy, seizures, and epilepsy: Dr. Brin Freund

Sixty percent of patients with dementia on autopsy studies have cerebral amyloid angiopathy (CAA) pathology. This episode discusses the relationship between CAA and epilepsy through the lens of a recent publication. Dr. Alina Ivaniuk talks with Dr. Brin Freund.

35th International Epilepsy Congress presents latest in epilepsy research and professional opportunities

The 35th International Epilepsy Congress (IEC) will take place September 2 – 6, 2023, in Dublin, Ireland. Registrants will hear from the best in global epileptology during teaching courses, symposia, and lectures hosted by the ILAE and IBE.

Soutenir les personnes atteintes d’épilepsie aves des outils pour réduire la stigmatisation

La stigmatisation affecte tous les aspects des soins de l’épilepsie, du diagnostic au traitement en passant par la législation et aux allocations budgétaires. Elle affecte la vie des personnes atteintes d’épilepsie lorsqu’elles n’ont pas un accès égal à l’éducation, à l’emploi et aux mêmes droits sociaux.

Empowering people with epilepsy to lead the way in reducing stigma

Stigma affects all aspects of epilepsy care. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. In a US study, one-third of respondents identified stigma—not seizures—as the most difficult part of living with epilepsy.

Moving epilepsy care closer to home: Dr. Gagandeep Singh and Dr. Meenakshi Sharma

Can bringing epilepsy care to people’s homes improve outcomes? ILAE spoke with two researchers who conducted a randomized trial of home-based care versus clinic-based care in northern India. Those receiving the home-based care, delivered by community health workers, had better outcomes.

How can primary health care help to close the epilepsy treatment gap? A journey through Andhra Pradesh, India

Hours from the nearest city in India, down a pothole-studded road framed by fish farms, primary care centers in Andra Pradesh provide service to tens of thousands of people. How do these centers care for people with epilepsy, and what challenges do they face?

La encuesta de ILAE destaca las preocupaciones globales sobre los medicamentos genéricos anticrisis

Los neurólogos de todo el mundo tienen preocupaciones sobre el uso de medicamentos genéricos anticrisis, cuestionando la calidad deficiente o inconsistente, el acceso limitado, el costo y la falta de control regulatorio.

ILAE survey highlights global concerns about generic anti-seizure medications

Neurologists worldwide have concerns about the use of generic anti-seizure medications, including poor or inconsistent quality, limited access, cost, and lack of regulatory control, according to a global survey of health care professionals.

World Health Organization unanimously approves plan to improve epilepsy care, reduce stigma

On 27 May 2022, World Health Organization Member States unanimously approved the Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP) at the 75th World Health Assembly in Geneva, Switzerland.

Addressing status epilepticus management in low-resource regions: “Where do we fit in?”

Low-resource areas face multiple challenges to diagnosing and treating long-lasting seizures, or status epilepticus. We talked with neurologists in four countries about how status epilepticus is managed in their areas.

Podcast – Persistent seizures: How to use the ketogenic diet for super-refractory status epilepticus

A recent paper in Neurology Clinical Practice offers practical considerations for using the ketogenic diet in patients with seizures that last more than 24 hours, a condition known as super-refractory status epilepticus. ILAE spoke with two of the authors – dietitian Neha Kaul and epileptologist Joshua Laing.

Podcast – Dieta cetogénica y estatus epiléptico súper refractario

Un artículo reciente en “Neurology Clinical Practice” ofrece consideraciones prácticas para el empleo de la dieta cetogénica en pacientes con estatus epiléptico superrefractario. La ILAE habló con dos de los autores del artículo. (Podcast en ingles; transcripcion en español.)

Can community-based interventions help to close the epilepsy treatment gap?

More than 50 million people have epilepsy; about 80% live in lower- or middle-income countries, where diagnosis and treatment can be difficult or impossible. The percentage of people with epilepsy that is not receiving treatment is known as the treatment gap; in some countries, this gap exceeds 90%.

Suspended studies and virtual lab meetings: How the COVID-19 pandemic is affecting epilepsy researchers

How was epilepsy research forced to morph during the first few months of the COVID-19 pandemic? Researchers from 11 countries shared their experiences and thoughts on the future of laboratory research, clinical trials, and in-person conferences.