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UrduLa stigmatisation affecte tous les aspects des soins de l’épilepsie, du diagnostic au traitement en passant par la législation et aux allocations budgétaires. Elle affecte la vie des personnes atteintes d’épilepsie lorsqu’elles n’ont pas un accès égal à l’éducation, à l’emploi et aux mêmes droits sociaux.
Tag: epilepsy stigma
Empowering people with epilepsy to lead the way in reducing stigma
Stigma affects all aspects of epilepsy care. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. In a US study, one-third of respondents identified stigma—not seizures—as the most difficult part of living with epilepsy.
Shining a light on stigma and discrimination in epilepsy
Stigma leads to discrimination and can affect all aspects of a person’s life. Dr. Bruna Nucera talked with Mary Secco from the International Bureau for Epilepsy (IBE) about addressing stigma through listening to people with epilepsy and their lived experiences.
How can primary health care help to close the epilepsy treatment gap? A journey through Andhra Pradesh, India
Hours from the nearest city in India, down a pothole-studded road framed by fish farms, primary care centers in Andra Pradesh provide service to tens of thousands of people. How do these centers care for people with epilepsy, and what challenges do they face?
Podcast episode: Creating epilepsy-smart schools in India
Children spend a lot of time in school, and that includes children with epilepsy. But most teachers don’t receive training in what epilepsy is, what seizures look like, or what to do if a student has a seizure.
Epilepsy education in India: Teacher training project aims to address stigma, increase inclusion
Schools can be important for epilepsy screening, as well as awareness of seizure first aid and basic knowledge. In a rural area of Punjab, a three-year project of surveys and training activities aimed to increase knowledge and dispel myths and misconceptions.