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UrduEn Ontario, Canadá, un grupo de psicólogos y miembros de una agencia comunitaria de apoyo a la epilepsia habían discutido durante mucho tiempo la necesidad de educación sobre la epilepsia para los maestros de escuela.
Tag: Epilepsy
Cost of Brand-Name Epilepsy Drugs Increased by 277% over Eight Years
The cost of brand-name drugs for epilepsy increased by 277% from 2010 to 2018, according to a study published in the June 15, 2022, online issue of Neurology®, the medical journal of the American Academy of Neurology. The cost of generic drugs for epilepsy decreased by 42% over the same period.
Teaching teachers about epilepsy: Intervention also benefits students, parents, neurologists
Though children spend many hours in school, their teachers often don’t have knowledge about epilepsy. Many are afraid of having students with epilepsy in their classes, which can be a barrier to both effective learning and student inclusion.
Genetic Testing for Neonatal Epilepsy Allows Babies to Go Home Sooner
Genetic testing results in lower length of stay in the neonatal intensive care unit (NICU) for infants with epilepsy, according to a study published in the journal Pediatric Neurology. The reduction in hospital stay time in babies with epilepsy who spent time in the NICU was not explained by changes in the severity of illness, birth weight or population changes in the NICU over time. These findings confirm the importance of early genetic testing for epilepsy, which allows more precise treatment and better seizure control during a critical time in brain development.
Epigenetics in epilepsy and the Michael Prize: Dr. Katja Kobow
Though she became involved in epilepsy epigenetics research “by accident,” Katja Kobow is already one of the leading researchers in the field, and the most recent recipient of the prestigious Michael Prize. Sharp Waves talked with her about the prize and her research.
World Health Organization unanimously approves plan to improve epilepsy care, reduce stigma
On 27 May 2022, World Health Organization Member States unanimously approved the Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP) at the 75th World Health Assembly in Geneva, Switzerland.
Epilepsy drug stops nervous system tumor growth in mice
People with neurofibromatosis type 1 (NF1) develop tumors on nerves throughout their bodies. Researchers at Washington University School of Medicine in St. Louis have discovered that nerve cells with the mutation that causes NF1 are hyperexcitable and that suppressing this hyperactivity with the epilepsy drug lamotrigine stops tumor growth in mice.
Epilepsy and pregnancy: A conversation with Dr. Page Pennell
Can women with epilepsy get pregnant, give birth to healthy babies, and breastfeed? What are the myths and misconceptions, and what do physicians and women need to know? Dr. Anca Arbune interviews Dr. Page Pennell about the latest research and knowledge.
Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders: What’s next?
The World Health Organization’s 75th World Health Assembly convenes May 22, with implications for epilepsy and other neurological disorders. Join us for a webinar discussing the member states’ vote on the Intersectoral Global Action Plan.
Albert Einstein College of Medicine Receives $11 Million Grant to Tackle Post-Traumatic Epilepsy
Approximately 1 in 50 people who suffer a traumatic brain injury (TBI) will develop post-traumatic epilepsy (PTE)—with the risk of PTE significantly higher in people with severe TBI. PTE is characterized by recurring seizures that begin a week or more after the brain injury, and there is currently no way to identify those at risk for developing PTE or to prevent its onset.
Addressing status epilepticus management in low-resource regions: “Where do we fit in?”
Low-resource areas face multiple challenges to diagnosing and treating long-lasting seizures, or status epilepticus. We talked with neurologists in four countries about how status epilepticus is managed in their areas.
Antidepressant Use During Pregnancy Not Linked to Epilepsy in Children
A new study suggests that antidepressant use by mothers during the first trimester of pregnancy does not increase the chances of epilepsy and seizures in babies. The research is published in the May 11, 2022, online issue of Neurology®, the medical journal of the American Academy of Neurology.
May 2022 Issue of Neurosurgical Focus: “Neurocutaneous Disorders”
Announcement of contents of the May 2022 issue of Neurosurgical Focus
Expert Alert: Laser therapy brings the heat to minimally invasive epilepsy treatment
ROCHESTER, Minn. — For roughly one-third of people with epilepsy, medication does not control their seizures. Depending on where seizures originate in the brain, laser interstitial thermal therapy (LITT) may be a minimally invasive surgery option. As the name suggests, lasers…
Crisis response in Ukraine: National and international efforts to secure medication and care for people with epilepsy
Since the war began in late February, Ukraine neurologists have been committed to helping citizens with epilepsy, many of whom have lost access to medications and regular care.
Seizures in the Canadian Arctic: A public health crisis, hidden in plain sight
He set out to research the effect of polar day-night patterns on seizure frequency and epilepsy. He found something he never expected: a public health crisis in one of the wealthiest countries in the world, relevant to geographically isolated communities and Indigenous peoples.
Fetal exposure to drugs may affect infants’ brain development
New study demonstrates that in utero exposure to mother’s antiepileptic or antidepressant medication may affect development of the newborn brain networks.
Seizure forecasting with wrist-worn devices possible for people with epilepsy, study shows
Despite medications, surgery and neurostimulation devices, many people with epilepsy continue to have seizures. The unpredictable nature of seizures is severely limiting. If seizures could be reliably forecast, people with epilepsy could alter their activities, take a fast-acting medication or turn up their neurostimulator to prevent a seizure or minimize its effects.
A new study in Scientific Reports by Mayo Clinic researchers and international collaborators found patterns could be identified in patients who wear a special wristwatch monitoring device for six to 12 months, allowing about 30 minutes of warning before a seizure occurred. This worked well most of the time for five of six patients studied.
Scientists Study Changes in Kids’ Brains after Epilepsy Surgery
Article title: Spectral changes following resective epilepsy surgery and neurocognitive function in children with epilepsy Authors: Olivia N. Arski, Simeon Wong, Nebras M. Warsi, Daniel J. Martire, Ayako Ochi, Hiroshi Otsubo, Elizabeth Donner, Puneet Jain, Elizabeth N. Kerr, Mary Lou…
Excellent Outcomes of Epilepsy Surgery in Babies Younger Than 3 Months
Epilepsy surgery in infants younger than 3 months is safe and effective, according to a multinational, multicenter study published in the journal Epilepsia. The study found that surgery can stop seizures and lessen the need for medications in babies with drug resistant epilepsy and epileptic encephalopathy.
Researchers boost human mental function with brain stimulation
In a pilot human study, researchers from the University of Minnesota Medical School and Massachusetts General Hospital show it is possible to improve specific human brain functions related to self-control and mental flexibility by merging artificial intelligence with targeted electrical brain stimulation.
Hackensack Meridian Children’s Health Epileptologist Publishes Research Showing Nasal Spray Seizure Rescue Medication is Safe and Effective When Used with Oral Medication
Eric Segal, M.D., co-director of Epilepsy at Joseph M. Sanzari Children’s Hospital at Hackensack Meridian Children’s Health has published new research showing that diazepam nasal spray*, which uses a type of medication called a benzodiazepine, is safe and effective for…
Common anti-seizure medication associated with elevated fracture risk in kids with epilepsy
A study found that one of the two most commonly prescribed anti-seizure medications is associated with a higher risk of fracture for children and teens with epilepsy. This is significant for this population as it comes during a critical period of bone development, a time during which several features coalesce to develop bone strength that peaks in adulthood.
Successful neurosurgery treats tonic-clonic seizures
Mexico City resident Alejandra Gaehd, who has long suffered from tonic-clonic seizures, has been able to return to a normal life following a minimally invasive procedure performed by UTHealth Houston neurosurgeon Nitin Tandon, MD.
Jersey Shore University Medical Center Welcomes Shabbar Danish, MD, as Chair of Neurosurgery
Hackensack Meridian Jersey Shore University Medical Center recently welcomed Board Certified Neurosurgeon Shabbar F. Danish, M.D., FAANS, as Chair of Neurosurgery as part of the academic medical center’s Neuroscience Institute.
Hopkins Med News Update
NEWS STORIES IN THIS ISSUE:
– COVID-19 NEWS: Johns Hopkins Medicine Study Shows Vaccine Likely Protects People with HIV
– Johns Hopkins Medicine Documents Stroke Risk in Cardiac Assist Device
– CBD Products May Help People with Epilepsy Better Tolerate Anti-Seizure Medications
Study Yields Tiny Targets for Healing Human Memory
Cedars-Sinai researchers have identified a set of brain cells that, when affected by epilepsy, cause memory impairment in patients with a particular type of the disorder called temporal lobe epilepsy (TLE).
Suicide-Risk Warning on Anti-Seizure Medications Lacks Evidence
An FDA warning on epilepsy drugs may pose greater risk to patients.
Joseph M. Sanzari Children’s Hospital Becomes First in New Jersey to Implant Responsive Neurostimulation Device in a Pediatric Patient with Epilepsy
Based on seizure and treatment history, the patient was a candidate for implantation of the NeuroPace RNS® System. The system is designed to treat focal seizures, which start in one or two specific parts of the brain.
Hopkins Med News Update
NEWS STORIES IN THIS ISSUE:
– Johns Hopkins Medicine Celebrates Its Contributions to Keto Therapy as Diet Turns 100
– COVID-19 News: Can Dietary Supplements Help the Immune System Fight Coronavirus Infection?
– Johns Hopkins Medicine Helps Develop Physician Training to Prevent Gun Injuries, Deaths
– COVID-19 News: Study Says Pandemic Impaired Reporting of Infectious Diseases
– Johns Hopkins Medicine Helps Create Treatment Guide for Neurodegenerative Disorders
– Johns Hopkins Pediatrics Says, ‘Get Kids Required Vaccines Before Going Back to School’
Neurosurgery team performs groundbreaking laser hemispherectomy on child with epilepsy
For only the second time in the world, doctors at the University of Chicago Medicine Comer Children’s Hospital and the Department of Neurosurgery used a minimally invasive surgery to disconnect the right and left sides of the brain, stopping the seizures for a boy with epilepsy.
Task force gives guidance on classifying neonatal seizures – An ILAE podcast
ILAE has published guidelines on classifying seizures and epilepsies, but those classifications don’t account for seizures in newborn babies. Two ILAE task forces spent several years on a position paper that modifies the seizure and epilepsy classifications for neonatal seizures.
Babies with Seizures May Be Overmedicated
Continuing antiseizure treatment after a baby’s neonatal seizures stop may not be necessary.
Case Western Reserve researchers identify potential new approach to better controlling epileptic seizures
Researchers from Case Western Reserve University have identified a potential new approach to better controlling epileptic seizures. Lin Mei, professor and chair of the Department of Neurosciences at the Case Western Reserve School of Medicine, who led the new study in mouse models, said the team found a new chemical reaction that could help control epileptic seizures.
Con cualquier otro nombre: Mejorar el acceso al tratamiento y reducir el estigma en las convulsiones psicógenas no epilépticas
Al igual que la epilepsia, los episodios paroxísticos no epilépticos (EPNE) interfieren en la vida personal, familiar y social de los pacientes.
¿Cómo llamar a los trastornos paroxísticos no epilépticos?
Se llaman convulsiones, ataques, eventos, episodios pero no son epilepsia. Conocidos por varios nombres, que incluyen convulsiones disociativas, episodios paroxísticos no epilépticos (EPNE) y convulsiones funcionales, pueden ser difíciles de identificar.
ILAE’s virtual conferences bring the latest in epilepsy to your laptop
Our Asian & Oceanian Epilepsy Congress, June 10-13, covers it all: social issues, diagnosis, treatment, research, and more. Anyone, anywhere can get a top-level, multi-day epilepsy conference delivered to their home or office and participate at their convenience.
Comment nommer les crises non-épileptiques psychogènes?
Le fait de changer le nom des crises psychogènes non épileptiques pourrait-il conduire à une meilleure communication médecin-patient, à une meilleure compréhension et à moins de stigmatisation?
Brain Organoids Help Illuminate and Test Treatments for Rare Form of Epilepsy
Animal models don’t consistently recapitulate human CDKL5 deficiency disorder (CDD), a rare form of epilepsy. Using personalized brain organoids — “mini-brains” in a lab dish derived from stem cells of patients deficient in CDKL5 protein — researchers at UC San…
Improving access to treatment and reducing stigma in psychogenic non-epileptic seizures (PNES)
Addressing stigma—from health care professionals, from family members and friends, from the public, and even from patients themselves—is a crucial part of improving care and access to care for people with PNES.
On Epilepsy Awareness Day Jim and Julie Cardwell Announce $100,000 Gift to TTUHSC El Paso’s Epilepsy Center
Thanks to a generous $100,000 gift from Jim and Julie Cardwell, Texas Tech University Health Sciences Center El Paso will upgrade the Texas Tech Physicians of El Paso (TTP El Paso) Epilepsy Center in the university’s Department of Neurology.
Lurie Children’s Approved for $4 Million in Funding for Study on Comparative Effectiveness of Palliative Surgery Versus Additional Anti-Seizure Medications For Lennox-Gastaut Syndrome
Anne Berg, PhD, Research Professor, and Sandi Lam, MD, MBA, Chief of Neurosurgery at Ann & Robert H. Lurie Children’s Hospital of Chicago have been approved for a $4 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) to conduct a study, Comparative effectiveness of palliative surgery versus additional anti-seizure medications for Lennox-Gastaut Syndrome.
Researchers Provide Complete Clinical Landscape for Major Gene Linked to Epilepsy and Autism
Researchers have compiled a complete genetic and clinical analysis of more than 400 individuals with SCN2A-related disorder, which has been linked to a variety of neurodevelopmental disorders, including epilepsy and autism. By linking clinical features to genetic abnormalities in a standardized format, the researchers hope their findings lead to improved identification and clinical intervention.
Study Maps Key Proteins Linked to Epilepsy, Revealing New Drug Targets
An analysis of adult human brain tissue reveals over 900 proteins tied to epilepsy. The brain disorder, estimated to afflict more than 3 million Americans, is mostly known for symptoms of hallucinations, dreamlike states, and uncontrolled, often disabling bodily seizures.
Do Epilepsy Medications Taken During Pregnancy Affect a Child’s Development?
Children born to women taking certain medications for epilepsy during pregnancy have no developmental delays at age three when compared to children of healthy women without epilepsy, according to a preliminary study released today, March 4, 2021, that will be presented at the American Academy of Neurology’s 73rd Annual Meeting being held virtually April 17 to 22, 2021. Most of the women with epilepsy in the study took either lamotrigine or levetiracetam during their pregnancy, or a combination of the two.
Podcast – Persistent seizures: How to use the ketogenic diet for super-refractory status epilepticus
A recent paper in Neurology Clinical Practice offers practical considerations for using the ketogenic diet in patients with seizures that last more than 24 hours, a condition known as super-refractory status epilepticus. ILAE spoke with two of the authors – dietitian Neha Kaul and epileptologist Joshua Laing.
Podcast – Dieta cetogénica y estatus epiléptico súper refractario
Un artículo reciente en “Neurology Clinical Practice” ofrece consideraciones prácticas para el empleo de la dieta cetogénica en pacientes con estatus epiléptico superrefractario. La ILAE habló con dos de los autores del artículo. (Podcast en ingles; transcripcion en español.)
La dieta cetogénica para el estado epiléptico superrefractario
La dieta cetogénica está emergiendo como una opción de tratamiento potencial para todas las etapas del estado epiléptico (SE), incluido el estado epiléptico refractario y superrefractario.
The ketogenic diet for super-refractory status epilepticus
The ketogenic diet is emerging as a potential treatment option for all stages of status epilepticus, a condition in which seizures persist for more than several minutes.
Deep brain stimulation prevents epileptic seizures in mouse model
Epileptic activity originating from one or more diseased brain regions in the temporal lobe is difficult to contain.