Whether it’s medical records, blood or tissue, patients want to know if researchers may use something from them

Many members of the public want to know if their health information or samples from their bodies will be used in research or to help develop new biomedical products, a new study finds. That’s especially true if their data and biospecimens might get used by commercial companies, or if identifying information will be attached when it’s shared.

Health Status of Vulnerable Gopher Tortoises Revealed in Southeastern Florida

In previously unstudied gopher tortoise aggregations, researchers found that overall, 42.9 percent had circulating antibodies to an infectious bacterium that causes upper respiratory tract disease. Physical examination showed that 19.8 percent had clinical signs consistent with upper respiratory tract disease and 13.2 percent had some form of physical abnormality. None of the tortoises tested positive for Ranavirus or Herpesvirus, which represents important baseline data, since these viruses are thought to be emerging pathogens of other tortoise and turtle species.