Tag: hereditary hemorrhagic telangiectasia

Johns Hopkins Researchers Call for Closing Gap in Collecting Racial and Ethnic Data in Studies of Rare Genetic Condition

sarah JonasResearch Results

In a review of published research papers, investigators from the Johns Hopkins Medicine Hereditary Hemorrhagic Telangiectasia (HHT) Center have identified a substantial lack of racial and ethnic data that may be negatively impacting the treatment and diagnosis of this rare disorder in diverse patients.