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UrduAdult heart patients benefit from numerous specialized devices for their cardiac needs, many of which allow them to rest at home while awaiting a heart transplant. However, the pediatric field faces a tough reality: only one ventricular assist device (VAD) with FDA approval for long-term use in infants and young children. This VAD, created in the 1980s, requires patients to remain hospitalized for their cardiac support needs.
Older children and teenagers can receive cardiac support using devices created for adults, which allows them to return home and go back to school. However, there is a notable gap in device options for infants and young children with end stage heart failure. Although tools for the youngest heart patients are limited, the Ochsner Children’s Hospital team provides top-of-the-line care to bridge patients safely to transplant and a hope for a better quality of life.
In America, pediatric heart failure results in more than 14,000 hospitalizations annually, outnumbering pediatric cancer. Yet, research and innovation in this field has not kept pace. There is a great need for more funded research to study novel ways to care for pediatric patients, instead of managing and treating their heart failure with just a few device options or adaptations of adult treatments.
To raise awareness of this issue, Ochsner Children’s Hospital has teamed up with 66 prominent medical institutions across the country through the Advanced Cardiac Therapies Improving Outcomes Network (ACTION). This collaboration seeks to increase the availability of pediatric-specific medical devices to patients who need them.
Katerina Boucek, MD, director of the Pediatric Ventricular Assist Device Program at Ochsner Children’s Hospital said, “We know where the gaps are in pediatric heart care, and we know the solutions; what’s lacking is the research and support for future developments in pediatric heart failure therapies. Our youngest heart patients deserve access to more specialized devices which will allow them to be home with their families rather than spending months to years hospitalized awaiting a transplant.”
Ochsner Children’s Hospital offers comprehensive care for pediatric heart failure patients from infants to young adults. For three consecutive years, U.S. News and World Report has ranked Ochsner Children’s the No.1 hospital for kids in Louisiana, with pediatric cardiology and heart surgery ranked among the nation’s top 50.
“For decades, Ochsner Children’s Hospital has built a team of renowned pediatric experts and one of the Gulf South region’s most comprehensive and successful programs in pediatric cardiology and heart surgery,” said Benjamin Peeler, MD, leader of Ochsner’s Pediatric and Adult Congenital Cardiac Surgery Program. “From infants to young adults, we can support the most critical heart failure patients with all available ventricular assist devices, but we know there is significant work ahead to build more pediatric-specific devices for our infants and young children in end-stage heart failure.”
ACTION, a pioneering collaboration among pediatric heart failure hospitals nationwide, comprises of physicians, nurses, patients, families, and researchers. As a united force, the group is dedicated to improving outcomes and enhancing the quality of life for young heart failure patients. This collaborative effort signifies an unprecedented milestone, disrupting traditional approaches, and Ochsner Children’s Hospital is dedicated to its mission.
Explore Ochsner Children’s Hospital’s impactful work at https://www.ochsner.org/services/pediatric-cardiology.
Learn about ACTION’s initiatives at www.actionlearningnetwork.org.
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About Ochsner Health
Ochsner Health is the leading not-for-profit healthcare provider in the Gulf South, delivering expert care at its 46 hospitals and more than 370 health and urgent care centers. For 12 consecutive years, U.S. News & World Report has recognized Ochsner as the No. 1 hospital in Louisiana. Additionally, Ochsner Children’s has been recognized as the No. 1 hospital for kids in Louisiana for three consecutive years. Ochsner inspires healthier lives and stronger communities through a combination of standard-setting expertise, quality and connection not found anywhere else in the region. In 2023, Ochsner Health cared for more than 1.5 million people from every state in the nation and 65 countries. Ochsner’s workforce includes more than 38,000 dedicated team members and over 4,700 employed and affiliated physicians. To learn more about how Ochsner empowers people to get well and stay well, visit https://www.ochsner.org/.
About ACTION
ACTION (Advanced Cardiac Therapies Improving Outcomes Network) is a global organization dedicated to enhancing outcomes for heart failure patients, with a particular focus on children. Since 2017, ACTION has fostered international collaboration among patients, families, clinicians, researchers, payors, and industry stakeholders. Based in Cincinnati, OH, ACTION employs a quality improvement and research-based approach, uniting 66 network sites and 1,185 members to share data, develop solutions, and drive innovations. Discover more at www.actionlearningnetwork.org.
