WHAT:
- MITRE and The Harris Poll will present findings from a new nationwide survey exploring the public’s perception of how industry, including health insurance companies and employers, may collect and use data generated by an individual’s purchasing, membership, or online activity. Credit card data, social media posts, and tv/streaming history and are all examples of lifestyle, or consumer-generated data (CGD). A moderated question and answer session will follow the presentation.
WHO:
- Erin Williams, Executive Director & Division Director, Biomedical Information, MITRE
- Rob Jekielek, Managing Director, The Harris Poll
- Cassandra Okechukwu, Principal, Health & Life Sciences, MITRE
- Kathy Mikk, Principal Health Policy Analyst, MITRE
- Dr. Eldesia Granger, Principal Clinical & Population Health Advisor, MITRE
WHEN:
- Thursday, August 27, 2020, 1:00 p.m. ET
WHERE:
- Virtual press conference, details available upon registration
RSVP:
- Media registration is required. RSVP to Mike Murphy, mdmurphy@mitre.org, 781-271-7284
BACKGROUND:
- To mitigate potential harm arising from the use of CGD for health care purposes, the MITRE research team developed An Ethical Framework for the Use of Consumer-Generated Data in Health Care. The framework is for organizations that use such third-party data and provides values, principles, and guidelines, that organizations can apply to promote ethical CGD use and better protect users.
About MITRE
MITRE’s mission-driven teams are dedicated to solving problems for a safer world. Through our public-private partnerships and federally funded R&D centers, we work across government and in partnership with industry to tackle challenges to the safety, stability, and well-being of our nation. Learn more at mitre.org.
